NORD Rare Disease Centers of Excellence by Edward Neilan, MD, PhD, NORS

NORD Rare Disease Centers of Excellence by Edward Neilan, MD, PhD, NORS

01 From Bitter to Better: My Invisible Rare DiseaseПодробнее

01 From Bitter to Better: My Invisible Rare Disease

NORD’s Rare Disease Centers of Excellence Benefits Individuals and CommunitiesПодробнее

NORD’s Rare Disease Centers of Excellence Benefits Individuals and Communities

Exclusive Interview With NORD for Rare Disease Day 2022Подробнее

Exclusive Interview With NORD for Rare Disease Day 2022

A Look at Rare Disease Listening Sessions with NORD and the FDAПодробнее

A Look at Rare Disease Listening Sessions with NORD and the FDA

Creation of Networks with Edward Neilan, NORDПодробнее

Creation of Networks with Edward Neilan, NORD

The NORD Rare Disease Centers of ExcellenceПодробнее

The NORD Rare Disease Centers of Excellence

Webinar: Rare Disease Centres of ExcellenceПодробнее

Webinar: Rare Disease Centres of Excellence

NORD 2019 Rare Diseases & Orphan Products Breakthrough SummitПодробнее

NORD 2019 Rare Diseases & Orphan Products Breakthrough Summit

What is it like to have a rare disease?Подробнее

What is it like to have a rare disease?

Rare Disease Registry: Using the DataПодробнее

Rare Disease Registry: Using the Data

Education; Making a Rare ImpactПодробнее

Education; Making a Rare Impact

Rare Disease Institute - Who We AreПодробнее

Rare Disease Institute - Who We Are

Rare Breakthroughs in Research and Care - 2024 NORD Living Rare ForumПодробнее

Rare Breakthroughs in Research and Care - 2024 NORD Living Rare Forum

NORD Rare Action NetworkПодробнее

NORD Rare Action Network