PORPHYRIA AWARNESS/LETS CHAT/ /infusion Day

PORPHYRIA AWARNESS/LETS CHAT/ /infusion Day

Porphyria Awareness Week 2018 ~ Shadow JumpersПодробнее

Porphyria Awareness Week 2018 ~ Shadow Jumpers

Porphyria AwarenessПодробнее

Porphyria Awareness

Porphyria as it Relates to Complex Chronic DiseaseПодробнее

Porphyria as it Relates to Complex Chronic Disease

International Porphyria Awareness Week PAG Perspectives: CanadaПодробнее

International Porphyria Awareness Week PAG Perspectives: Canada

Treating and Managing Patients with AHPПодробнее

Treating and Managing Patients with AHP

Porphyria Live!Подробнее

Porphyria Live!

Dr. Nilesh Patel - Acute Intermittent PorphyriaПодробнее

Dr. Nilesh Patel - Acute Intermittent Porphyria

Acute intermittent porphyria patient - Desiree LyonПодробнее

Acute intermittent porphyria patient - Desiree Lyon

Pain Management In Porphyria Patients. Talk by Dr Deepak Ravindran for British Porphyria AssociationПодробнее

Pain Management In Porphyria Patients. Talk by Dr Deepak Ravindran for British Porphyria Association

Caring for Patients with Acute Hepatic PorphyriaПодробнее

Caring for Patients with Acute Hepatic Porphyria

How to Care for Patients with Acute Hepatic Porphyrias (AHPs) and the Latest DevelopmentsПодробнее

How to Care for Patients with Acute Hepatic Porphyrias (AHPs) and the Latest Developments

A Patient’s 22-year Journey to Diagnosis of AHPПодробнее

A Patient’s 22-year Journey to Diagnosis of AHP

Rare Disease Day 2021 Patient Panel: How Care and Research Have Changed During COVID 19Подробнее

Rare Disease Day 2021 Patient Panel: How Care and Research Have Changed During COVID 19

Porphyria Infusion - more about my story with Porphyria below:Подробнее

Porphyria Infusion - more about my story with Porphyria below:

Porphyria - An IntroductionПодробнее

Porphyria - An Introduction

Story of a Patient Living with Variegate PorphyriaПодробнее

Story of a Patient Living with Variegate Porphyria

Living With Acute Intermittent Porphyria (AIP)Подробнее

Living With Acute Intermittent Porphyria (AIP)

Patient Stories: PorphyriaПодробнее

Patient Stories: Porphyria

Variegate porphyria patient - John ChamberlayneПодробнее

Variegate porphyria patient - John Chamberlayne