Shared Stewardship in Collaborative Curation of Rare Disease Datasets

Shared Stewardship in Collaborative Curation of Rare Disease Datasets

Webinar: RDCA-DAP and EATRIS Present Rare Disease Drug DevelopmentПодробнее

Webinar: RDCA-DAP and EATRIS Present Rare Disease Drug Development

RARE Drug Development Symposium: Advancing Clinical Transparency & Data Sharing in Rare ResearchПодробнее

RARE Drug Development Symposium: Advancing Clinical Transparency & Data Sharing in Rare Research

CPP CODR Database — Data Standards: Why are they neededПодробнее

CPP CODR Database — Data Standards: Why are they needed

Collaborate on Rare Disease RACTПодробнее

Collaborate on Rare Disease RACT

Caring for Datasets: A Framework for Deprecating Datasets and Responsible Data StewardshipПодробнее

Caring for Datasets: A Framework for Deprecating Datasets and Responsible Data Stewardship

Aggregating and Sharing Clinical Evidence to Improve the Diagnosis of Rare DiseasesПодробнее

Aggregating and Sharing Clinical Evidence to Improve the Diagnosis of Rare Diseases

How Can Genomic and Health Data Shared By Patients Inform Variant Classification?Подробнее

How Can Genomic and Health Data Shared By Patients Inform Variant Classification?

EATx RDCA-DAP - webinar on ‘Data Sharing and Analysis to Support Rare Disease Drug Development‘Подробнее

EATx RDCA-DAP - webinar on ‘Data Sharing and Analysis to Support Rare Disease Drug Development‘

Genetic Data SharingПодробнее

Genetic Data Sharing

Kipnis Research Lab: How Collaboration Played a Role in Major DiscoveryПодробнее

Kipnis Research Lab: How Collaboration Played a Role in Major Discovery

Genomic Data Sharing Policies Webinar (Introduction)Подробнее

Genomic Data Sharing Policies Webinar (Introduction)

Platforms & registries for sharing participant-level clinical-epidemiological, OMICs & imaging dataПодробнее

Platforms & registries for sharing participant-level clinical-epidemiological, OMICs & imaging data

Workshop #1: Multi-omics helpdesk, data-centric analysis platform and NGS diagnostics case studyПодробнее

Workshop #1: Multi-omics helpdesk, data-centric analysis platform and NGS diagnostics case study

How to share pathogen genomic dataПодробнее

How to share pathogen genomic data

Enabling Federated Discovery, Access, and Analysis of Global DatasetsПодробнее

Enabling Federated Discovery, Access, and Analysis of Global Datasets

Sharing genomic data is the way forward in providing better treatments for patientsПодробнее

Sharing genomic data is the way forward in providing better treatments for patients